Saturday, February 14, 2015

PWW Captains Blog 02.14.15

Update...

Had an ultrasound on 02.13.15 and the technician said "you are full of fluid!, you know, we can remove that for you?" 



My response was "Yeah, I knew I was not pregnant... "and "no, I did not know it could be removed".










After the ultrasound, I headed up to the oncologist's office and spoke to the nurse about having the procedure. She met with the doctor, who reviewed the ultra sound report and agreed, I was a good candidate for this procedure, called Paracentesis. The fluid is called ascites. Damn.. now I have to learn all these medical terms. There was a reason I did not go into medicine. My memory for terms, kind of sucks. 


This is from a page about paracentesis:

"There are two reasons to take fluid out of the abdomen. One is to analyze it for diagnostic purposes; the other is to relieve pressure. Liquid that accumulates in the abdomen is called ascites. Ascites seeps out of organs for several reasons related either to disease in the organ or fluid pressures that are changing. Read more: http://www.surgeryencyclopedia.com/La-Pa/Paracentesis.html#ixzz3Rm4aODDb  "

My procedure was scheduled for Friday the 13th at 10:15 a.m. I was a bit anxious, due to the idea of someone sticking a needle and tube into my gut and sucking out fluid. However, I was very excited about the idea of getting the pressure relieved.

The sonographer (ultrasound technician) was a very sweet young lady. We chatted and I asked her a lot of questions about the procedure and then tried to relax and talked about her family. She was from Vietnam and had the most beautiful captive eyes. When I told her that I they were beautiful, her whole face lit up and she was shocked.. she kept asking "me?? you think I have beautiful eyes??!!" It was rather charming. She was so humble and excited at the same time and said I made her day.

After she took some images, the doctor came in to perform the procedure. He did not wear scrubs, which I thought was odd, nor did he have on a lab coat. Oh well. Young doctors. He explained the procedure in more detail. They saw that most of the fluid was on my left (near the ovary and tumor). He poked me with lidocaine to numb the area.. but when he tried to put in the catheter yelled. So more lidocaine and then it all went smooth.




The technician had brought in a case of 3 liter glass jars to collect the fluid. The tube was connected to the fist jar and it soon filled with a nasty liquid. I will spare the details.  Within 30 minutes, they had drained out  3 and 1/2 bottles. That was 7 liters of liquid! 



Oh My God!.. I was carrying around SEVEN liters of liquid.. no wonder I could not stand, or bend or walk.. 

My belly has been sore, but I feel so much better. I finally got a great night of sleep. Sigh.. what a relief!


Update... 02.25.15

Went to another clinic and they found more fluid had built up ~ revoved an additional 3 liters.. yuck.. that was 10 liters of nasty cancer cell filled fluid called Ascites

Wednesday, February 11, 2015

PWW Captain's Blog. 02.10.15

Before going to the oncologist appointment I researched what to ask. I turned to my support groups for help. I am so glad I did. I took my trusted notebook and husband too, and we met with the medical oncologist for an hour. He gave us the big picture.. one of the things he said is that cancer CANNOT be diagnosed without tissue biopsy.. he said

"Tumor is rumor, tissue is issue!"



So, until more tests are done.. we do not know what we are fighting. For now.. I take one step at a time.

Yes. they did find a mass.


Yes. it is affecting other surrounding areas.


Next step:

Pick up film from urgent care (no, they did not send images)
Get blood draw for more tests, including the CA125 (may indicate o.c.)
Get vaginal ultrasound
Fly to Los Angeles to be with daughter (she is having surgery and needs to see her mommy)
Get unconventional ultrasound and biopsy of tissue.
See OHSU gynecological oncologist next week (19th)

to be continued....


PWW Captain's Blog, 02.06.2015

I had a lot of abdominal bloating and pain, I had seen several doctors and things were just not getting better. The pain was getting worse and I could barely stand up. I drove myself to the urgent care and they did some blood work and CT scan and told me that I had some issues with ketone and ketosis.. I shrugged my shoulders and thought it must have been the effects of a non carb liquid diet.

I was bloated. I was nauseated. I had pelvic pain. I had urinary urgency and bowel changes. I had back pain.

The doctor told me to make an appointment with a gastro specialist and said she would call with the results of the tests.

Little did I know...

A few hours late, my life turned upside down.




I got a call from the urgent care doctor telling me these words (I kid you not!)

"Valerie: I have some bad news for you, you have ovarian cancer and it has spread. You need to see an oncologist right away!"

I NEVER in a million years ever thought I would get cancer... it does not run in my family.. and then I found out that 15% of those that are diagnosed with O.C. do not have family history of cancer...

I then looked up the symptoms... and guess what? Yup.. I had the symptoms.



Next steps

    1. make appointment with oncologist
    2. stay calm
    3. tell family
    4. research
    5. find support
    6. breathe


I got on the phone and made an appointment for the 20th.. SEEMS LIKE FOREVER! 
I called a friend and work and asked.. "How do I tell my family"
I called/texted each of my family members.
I went online and found an ovarian cancer support group (was a great move)
I took time and laid down and did some meditation... 

I resolved to fight this.. whatever it was. 

Oh, yeah. I cried too. 

PWW Captain's Blog. 02.06.15

My newest passion... fighting against a tumor .. one suspected of being cancerous. Yes.. the BIG "C"

Not only Cancer, but most likely Ovarian Cancer... I got this! I am a Pirate Warrior Wench!




I have been fighting all my life, fought to leave the streets, fought against abuse, fought against muscular dystrophy.. and now, for the most likely biggest battle, I will fight this cancer.

Mote it be!
PWW
(Pirate Warrior Wench)